Monday, 12 September 2016

Let's Push Things Forward

A track by The Streets from Original Pirate Material. That's one of the best albums since the turn of the century so I wanted to use a lyric from that as a blog title but most of the tracks are about getting drunk, taking drugs and shagging birds [sic] and I don't think that is an entirely accurate reflection of my current activities. I was going to use the lyric, 'I excel in both content and deliverance so let's put on our classics and we'll have a little dance, shall we?', from the same track but that goes beyond sarcasm and into falsehood. (Only because I'm not much of a dancer, obviously everything I say is amazing.)

I'm bored! Not in a nothing to do right now kind of way but in a nothing to do ever kind of way. I do stuff to pass the time but I'm not going anywhere. I live in a bubble and it's not a glamorous champagne bubble, it's more akin to a dying bubble in a flat bottle of Lambrini. Tasty. (That's no reflection on the friends and family I do see by the way, I enjoy their company muchly!) I need to start pushing things forward in life.

What I really want is a job. Working is much like growing up with a sibling. They are a total nuisance at times but really you know you wouldn't choose to be without them. And in fact it's better, in most jobs you work within a team so you get a bit of chat, which is more than my sister ever gave me! It's the social interaction of working that I crave so much.

Why don't I get a job? Tremors. It's difficult to explain how debilitating they are. Sat still I don't shake but as soon as I come to do something my arms and hands are uncontrollable. Imagine you're stood naked at the South Pole. My tremors are comparable to the amount you'd be shivering. To liven up this scene you can imagine that you're speaking to a penguin, after all I have Bamboleo. But no spooning with a friendly polar bear for warmth, that's cheating.

Before anyone will pay me to work I need to lose the tremors. I'm still on the waiting list for deep brain stimulation. (That 'non-invasive' brain surgery that takes six hours and involves drilling through my skull and putting wires in me.) The doctors are hoping to do that early next year, I don't know why it takes so long, it's only brain surgery, not exactly rocket science is it? (https://youtu.be/THNPmhBl-8I) There's no guarantee that will help the tremors either, it's used mainly for Parkinson's disease. I'll just have to go into it with an open mind (literally) and hope for the best.

Today I have sorted some voluntary work though and I'm delighted! It's with Sunderland Mind. Mind is a national charity which aims to help people with, and remove the stigmas attached to, mental health problems. It'll only be for a few hours a week initially, I'm starting with the writing group and the men's group. I could pick up some tips myself at the writing group and I'll be able to find out what men talk about at the other. Maybe I'll be able to grow a beard then? (I would then immediately shave it off coz I don't like beards but it would be nice to be able to have one.)

I'm also seeing a neurological physiotherapist next week. I'm pretty sure that I have a greater range of movement in my right knee but it feels very unnatural so when I walk I tend to swing my leg rather than lift it from the knee. (Much like a pirate with a wooden leg. Except I don't have a parrot.). I need to relearn how to walk properly as I have become accustomed to a lot of bad habits with my walking over the last 18 months so this will probably be quite difficult. Apparently you should set yourself (achievable) targets. My aim is to walk a mile comfortably and continuously. You have to walk a mile in somebody else's shoes to know how they feel and I might try and steal a pair of Natalie Portman's shoes, I bet she feels really nice.

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